I found out my youngest son Nick had Duchenne Muscular Dystrophy at age 6. When you hear news like this it is earth shattering! The prognosis is bleak. No cure, wheelchair bound by 12 and life expectancy 21. The disease so far has been a true test to all of us.
Fast forward to present day. Nick is 21. He is in a wheelchair and still no cure. On January 2 of this year 2020, he had elective surgery on his colon. Surgery went well and we went home after a 5 day stay in the hospital. The second day home, Nick was in excruciating pain. We immediately head back to the hospital. Did I mention that it is about a two hour drive!
Arrive at the hospital which consisted of 2 emergency surgeries where we almost lost him. 8 surgeries later and an ilestomy bag that helped save his life.
It was just about 2 months staying in the hospital. We had to leave our 2 adult children without their mom, dad and brother. My husband had to go on a family leave with no pay from his job so we could be with our son. The hospital became our temporary home.
We have been home since the end of January. We still had to travel twice a week to and from the hospital for outpatient procedures. In March we had his final procedure and then Covid hit.
My friends life can throw you some curve balls! Everything that happened to my son was unimaginable. How could he go through all these trials? How would our family cope with the events that played out in our lives?
I am hear to tell you that God is the only way to get through it! You hear people say it and I am hear to exclaim it! He is the only way. I truly believe that he watched over all of us and gave us the strength we needed. Not to say we didn’t have awful moments where we wanted to run screaming and crying in the other direction.
My son was having a hard time understanding why would God make this happen to me? Is he mad at me?
It had been taking it’s toll on him and he was feeling depressed and anxious. I decided to start a daily devotional with him. In the past, I would leave it up to him to do and I would have to nag him about it. This never worked, so I had to incorporate it in our daily routine. I am hear to say, it has helped him tremendously. He is doing much better emotionally and I think he is getting used to the idea of having God in his corner.
The reason for this glimpse into my family’s lives is to give you hope. Jesus died for all of our sins. We have a father that loves us no matter what the circumstances. Faith can get you through the most difficult times! Jesus is your best friend and confidant. He is there for you anytime.
I hope this can help you in difficult times times like it did for us. God loves you, you just have to let him in.❤️
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