Decorating with Dina Michele

 I found out my youngest son Nick had Duchenne Muscular Dystrophy at age 6. When you hear news like this it is earth shattering! The prognosis is bleak. No cure, wheelchair bound by 12 and life expectancy 21. The disease so far has been a true test to all of us.   Fast forward to present day. Nick is 21. He is in a wheelchair and still no cure. On January 2 of this year 2020, he had elective surgery on his colon. Surgery went well and we went home after a 5 day stay in the hospital. The second day home, Nick was in excruciating pain. We immediately head back to the hospital. Did I mention that it is about a two hour drive!  Arrive at the hospital which consisted of 2 emergency surgeries where we almost lost him. 8 surgeries later and an ilestomy bag that helped save his life.  It was just about 2 months staying in the hospital. We had to leave our 2 adult children without their mom, dad and brother. My husband had to go on a family leave with no pay from his job so we could be with our